The DES Follow-Up Study investigates the long-term health consequences associated with exposure to diethylstilbestrol (DES). Since 1992, the National Cancer Institute, in collaboration with research centers throughout the United States has been conducting the DES Follow-Up Study of more than 21,000 mothers, daughters, and sons.
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Dear DES Study Participants, In June of 2006 we began the fourth round of follow-up with you, our DES study participants. We mailed questionnaires, conducted telephone interviews and during the last year offered a web-based version of the questionnaire. Nearly 90% of you completed a questionnaire and we want to thank each of you for your ongoing contribution to this important research. The response from those who were exposed to DES and those of you who were not has been outstanding and is greatly appreciated. We are now beginning to analyze the information you provided. These data make it possible for us to identify any new health risks that may be occurring in the study participants. Being able to follow the same group of people over many years is a major advantage of this type of research and enables us to try to understand the long-term consequences of exposure to DES. Based on the information you have provided in previous questionnaires several new papers have been published. Please check the Publications page on the site to find out more about the new findings. A brief summary of the key information about each paper is provided. If you have any questions about the study, please refer to the Frequently Asked Questions (FAQ) page or you can contact your individual center by clicking on the Contacts link. Thank you again for your participation and please continue to visit this web site for the most current information on DES research. Sincerely yours, Robert Hoover, M.D., Sc.D. Division of Cancer Epidemiology and Genetics
* The DES Action and DES
Cancer Network links are
not associated with NCI.
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